Wider Consultation on Pulmonary Rehabilitation for Chronic Obstructive Pulmonary Disease

  • Frances Rapport Swansea University
  • Hayley A. Hutchings Swansea University
  • Sarah Wright Swansea University
  • Marcus A. Doel Swansea University
  • Clare Clement Swansea University
  • Keir Lewis Swansea University
Keywords: mixed methods, user experience, COPD, pulmonary rehabilitation, patients, health professionals

Abstract

In this article we examine whether an innovative mixed method approach could highlight the positive and challenging effects of a Pulmonary Rehabilitation Programme (PRP) on the Quality of Life (QOL) of patients with Chronic Obstructive Pulmonary Disease (COPD). In 2012, we conducted three consultation workshops in Mid-West Wales, UK, with COPD patients that participated in a PRP, their significant others (e.g. spouses and partners), and healthcare professionals who delivered the PRP. We found that there was a resounding enthusiasm for the content and impact of the programme, particularly in the areas of: increased patient activity, enhanced patient control and confidence, a greater willingness to self-manage treatment, and an increased sense of group belonging. Seven key themes mattered most to our study participants: the patient, physical health, mental health, the programme, professionals and significant others, knowledge and education, and the future. We used these themes to craft a best-practice outcomes document (template) of the benefits and challenges of the PRP to inform and support future service evaluation and delivery.

URN: http://nbn-resolving.de/urn:nbn:de:0114-fqs150179

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Author Biographies

Frances Rapport, Swansea University

Frances RAPPORT (PhD) is a social scientist with a background in the arts. She is professor of qualitative health research at the College of Medicine, Swansea University, Director of Qualitative Enquiry Supporting Trials (QUEST) and Director of the Qualitative Research Unit. Frances RAPPORT has visiting professorships at: Harvard University, Texas University, Bournemouth University, Tromsø University, and King Abdulaziz University. She is involved in research to improve the health of patients and the quality of their care, currently researching: patient-centered professionalism, chronic conditions rehabilitation, qualitative research and its integration into clinical trials, and assisted reproductive technology medicine.

Hayley A. Hutchings, Swansea University

Dr. Hayley HUTCHINGS is an associate professor in health services research at the College of Medicine, Swansea University. She has an extensive history of conducting and teaching health services research and has published widely in the area. Her research interests include: patient reported outcome measures, chronic conditions, patient-centered professionalism and routine data.

Sarah Wright, Swansea University

Sarah WRIGHT is currently the Unit Manager for the West Wales Organisation for Rigorous Trials in Health (WWORTH) and is completing a PhD and conducts research within the Qualitative Research Unit at the College of Medicine, Swansea University. Her doctoral research focuses upon the experiences of inflammatory bowel disease patients in their consultations with healthcare professionals in secondary care settings. Prior to this she studied anthropology and sociology as an undergraduate and also gained an MSc in social research methods.

Marcus A. Doel, Swansea University

Marcus DOEL is professor of human geography, Deputy Pro Vice Chancellor and Deputy Head of the College of Science at Swansea University. His research areas of interest include: poststructuralist geography, post-Marxist geography & deconstructive geography, the spatial thought of Alain BADIOU, Jean BAUDRILLARD, Gilles DELEUZE and Jacques DERRIDA, modern and postmodern consumer culture, especially in urban contexts, libidinal economy, political economy and spatial theory, financialisation of everyday life and the formation of financial subjectivities and workspace, professionalism and identity in general practice, community pharmacy and community nursing. He has published widely in these areas.

Clare Clement, Swansea University

Clare CLEMENT is a trial qualitative researcher with Qualitative Enquiry Supporting Trials (QUEST) and is currently completing a PhD with the College of Medicine, Swansea University. Her doctoral research focuses on how qualitative methods, interact, influence and impact on clinical trials and the roles of research personnel and organisations using mixed methodology. Her background is in psychology and she has an MSc in health psychology. Her research interests include: applying qualitative methodology within clinical trials and methodological advancements in "health" and how this is experienced and perceived within the context of healthcare services.

Keir Lewis, Swansea University

Dr. Keir LEWIS is a clinical senior lecturer in respiratory medicine at the College of Medicine, Swansea University and is a honorary respiratory consultant at Hywel Dda University Health Board. He has a wide variety of research activities and interests, but has a principle interest in smoking cessation and sleep disturbed breathing.

Published
2014-11-24
How to Cite
Rapport, F., Hutchings, H. A., Wright, S., Doel, M. A., Clement, C., & Lewis, K. (2014). Wider Consultation on Pulmonary Rehabilitation for Chronic Obstructive Pulmonary Disease. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 16(1). https://doi.org/10.17169/fqs-16.1.2180
Section
Single Contributions