Conducting Research With an Adolescent Diagnosed With Fragile X Syndrome

  • Chantel Lynette Weber University of South Africa
Keywords: disability, adolescent, qualitative research, fragile X syndrome, case study


In this article I address the reflexive nature of research undertaken when I investigated the presence of resilience found in an adolescent girl diagnosed with fragile X syndrome. The highlights of this article include specific challenges I experienced when conducting research with this adolescent and how I have adapted the process accordingly. These challenges involve the planning and preparation before data commenced; the influence of sensory integration, behavioral, cognitive and language characteristics of fragile X syndrome on an adolescent girl; and the aspects of ethical and rigorous research. I have also included recommendations such as guidelines for other researchers interested in conducting a similar study with adolescents affected by fragile X syndrome. I hope that with this article, other researchers would be provided with a better understanding of how to proceed with research that involves individuals with disabilities and more specifically, individuals diagnosed with fragile X syndrome.



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Author Biography

Chantel Lynette Weber, University of South Africa

Chantel L. WEBER is a lecturer in the Department of Psychology of Education at the University of South Africa. Her research interests are resilience and mental impairment.

How to Cite
Weber, C. L. (2017). Conducting Research With an Adolescent Diagnosed With Fragile X Syndrome. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 18(2).
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